Exploring the Relationship between Social Support and Parental Stress in Mothers of Children with Autism

Authors

  • Siti Musayaroh Universitas Sultan Ageng Tirtayasa
  • Reza Febri Abadi Universitas Sultan Ageng Tirtayasa
  • Sayidatul Maslahah Universitas Sultan Ageng Tirtayasa
  • Rr. Farhana Rizqi Karina Monash University

DOI:

https://doi.org/10.57142/picsar.v3i1.565

Keywords:

children with autism, mothers, parental stress, social support

Abstract

Parents of children with autism, especially mothers, experience more parental stress compared to mothers of typical children. The aim of this research was to discuss the relationship between social support perceived to mothers of children with autism and parental stress levels, and to investigate the relationship between the characteristics of the mothers/their children and parental stress. Fifty mothers of children with autism in Banten Province completed the Social Support Index (SSI) and Parental Stress Scale (PSS) through a Google Form. The data was analyzed using Pearson Correlation and multiple regression analysis. Results show that the mothers had high social support (M = 61.72) and experienced lower stress in parenting their children (M = 39.56). Moreover, SSI has a significant negative correlation with PSS (r = -.519, p = .01), indicating that the higher social support accepted by mothers of children with autism, the lower level of parental stress they experienced. Surprisingly, mothers of children with autism who have siblings have lower parental stress than those of them without siblings.

References

Alvarez, D., Adynski, H., Harris, R., Zou, B., Taylor, J. Y., & Santos, H. P. (2024). Social Support Is Protective Against the Effects of Discrimination on Parental Mental Health Outcomes. Journal of the American Psychiatric Nurses Association, 10783903241243092. https://doi.org/10.1177/10783903241243092

Ayala-Nunes, L., Nunes, C., & Lemos, I. (2017). Social support and parenting stress in at-risk Portuguese families. Journal of Social Work, 17(2), 207–225. https://doi.org/10.1177/1468017316640200

Batool, S. S., & Khurshid, S. (2015). Factors Associated with Stress Among Parents of Children with Autism. 25.

Ben-Itzchak, E., Nachshon, N., & Zachor, D. A. (2019). Having Siblings is Associated with Better Social Functioning in Autism Spectrum Disorder. Journal of Abnormal Child Psychology, 47(5), 921–931. https://doi.org/10.1007/s10802-018-0473-z

Berry, J. O., & Jones, W. H. (1995). The Parental Stress Scale: Initial Psychometric Evidence. Journal of Social and Personal Relationships, 12(3), 463–472. https://doi.org/10.1177/0265407595123009

Bonis, S. (2016). Stress and Parents of Children with Autism: A Review of Literature. Issues in Mental Health Nursing, 37(3), 153–163. https://doi.org/10.3109/01612840.2015.1116030

Chen, S. D., Yu, Y., Li, X. K., Chen, S. Q., & Ren, J. (2021). Parental Self-Efficacy and Behavioral Problems in Children with Autism During COVID-19: A Moderated Mediation Model of Parenting Stress and Perceived Social Support. Psychology Research and Behavior Management, Volume 14, 1291–1301. https://doi.org/10.2147/PRBM.S327377

Costa, A. P., Steffgen, G., & Ferring, D. (2017). Contributors to well-being and stress in parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 37, 61–72. https://doi.org/10.1016/j.rasd.2017.01.007

Cridland, E. K., Jones, S. C., Stoyles, G., Caputi, P., & Magee, C. A. (2016). Families Living With Autism Spectrum Disorder: Roles and Responsibilities of Adolescent Sisters. Focus on Autism and Other Developmental Disabilities, 31(3), 196–207. https://doi.org/10.1177/1088357615583466

Cuzzocrea, F., Murdaca, A. M., Costa, S., Filippello, P., & Larcan, R. (2016). Parental stress, coping strategies and social support in families of children with a disability. Child Care in Practice, 22(1), 3–19. https://doi.org/10.1080/13575279.2015.1064357

Daulay, N. (2018). Parenting Stress of Mothers in Children with Autism Spectrum Disorder: A Review of the Culture in Indonesia. KnE Social Sciences, 3(5), 453. https://doi.org/10.18502/kss.v3i5.2349

Doty, J. L., & Dworkin, J. (2014). Online Social Support for Parents: A Critical Review. Marriage & Family Review, 50(2), 174–198. https://doi.org/10.1080/01494929.2013.834027

Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing Distress in Mothers of Children With Autism and Other Disabilities: A Randomized Trial. Pediatrics, 134(2), e454–e463. https://doi.org/10.1542/peds.2013-3164

Emam, M. M., Al-Hendawi, M., & Ali, D. G. (2023). Parenting stress and life satisfaction in families of children with disabilities: The mediating effect of social support in three Arab speaking countries. Journal of Family Studies, 29(1), 134–152. https://doi.org/10.1080/13229400.2021.1893791

Gong, Y., Du, Y., Li, H., Zhang, X., An, Y., & Wu, B.-L. (2015). Parenting stress and affective symptoms in parents of autistic children. Science China Life Sciences, 58(10), 1036–1043. https://doi.org/10.1007/s11427-012-4293-z

Hong, X., & Liu, Q. (2021). Parenting stress, social support and parenting self-efficacy in Chinese families: Does the number of children matter? Early Child Development and Care, 191(14), 2269–2280. https://doi.org/10.1080/03004430.2019.1702036

Hsiao, Y.-J., Higgins, K., Pierce, T., Whitby, P. J. S., & Tandy, R. D. (2017). Parental stress, family quality of life, and family-teacher partnerships: Families of children with autism spectrum disorder. Research in Developmental Disabilities, 70, 152–162. https://doi.org/10.1016/j.ridd.2017.08.013

Kissel, S. D., & Nelson, W. M. (2016). Parents’ Perceptions of the Severity of Their Child’s Autistic Behaviors and Differences in Parental Stress, Family Functioning, and Social Support. Focus on Autism and Other Developmental Disabilities, 31(2), 152–160. https://doi.org/10.1177/1088357614537352

Lutfatulatifah, L. (2020). Dominasi Ibu dalam Peran Pengasuhan Anak di Benda Kerep Cirebon. Equalita: Jurnal Studi Gender dan Anak, 2(1), 67. https://doi.org/10.24235/equalita.v2i1.7057

Ma, J. L. C., Lai, K. Y. C., & Lo, J. W. K. (2017). Perceived social support in Chinese parents of children with attention deficit hyperactivity disorder in a Chinese context: Implications for social work practice. Social Work in Mental Health, 15(1), 28–46. https://doi.org/10.1080/15332985.2016.1159643

McCubbin, H., Patterson, J., & Glynn, T. (1982). Social Support Index (SSI) (pp. 357–38). Madison: University of Wisconsin System.

Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting Stress in Mothers of Children With Autism Without Intellectual Disability. Mediation of Behavioral Problems and Coping Strategies. Frontiers in Psychology, 10, 464. https://doi.org/10.3389/fpsyg.2019.00464

Nisa’, H., Puspitarini, L. M., & Zahrohti, M. L. (2022). Perbedaan Peran Ibu dan Ayah dalam Pengasuhan Anak pada Keluarga Jawa. 01(02), 244–255.

Onyedibe, M. C. C., Ugwu, L. I., Mefoh, P., C., & Onuiri, C. (2018). Parents of children with Down Syndrome: Do resilience and social support matter to their experience of carer stress? Journal of Psychology in Africa, 28(2), 94–99. https://doi.org/10.1080/14330237.2018.1455308

Padden, C., & James, J. E. (2017). Stress among Parents of Children with and without Autism Spectrum Disorder: A Comparison Involving Physiological Indicators and Parent Self-Reports. Journal of Developmental and Physical Disabilities, 29(4), 567–586. https://doi.org/10.1007/s10882-017-9547-z

Pozo, P., & Sarriá, E. (2015). Still stressed but feeling better: Well-being in autism spectrum disorder families as children become adults. Autism, 19(7), 805–813. https://doi.org/10.1177/1362361315583191

Ren, J., Li, X., Chen, S., Chen, S., & Nie, Y. (2020). The Influence of Factors Such as Parenting Stress and Social Support on the State Anxiety in Parents of Special Needs Children During the COVID-19 Epidemic. Frontiers in Psychology, 11, 565393. https://doi.org/10.3389/fpsyg.2020.565393

Riany, Y. E., & Ihsana, A. (2021). Parenting stress, social support, self-compassion, and parenting practices among mothers of children with ASD and ADHD. Psikohumaniora: Jurnal Penelitian Psikologi, 6(1), 47–60. https://doi.org/10.21580/pjpp.v6i1.6681

Shepherd, D., Goedeke, S., Landon, J., & Meads, J. (2020). The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 50(4), 1337–1352. https://doi.org/10.1007/s10803-019-04359-5

Slattery, É., McMahon, J., & Gallagher, S. (2017). Optimism and benefit finding in parents of children with developmental disabilities: The role of positive reappraisal and social support. Research in Developmental Disabilities, 65, 12–22. https://doi.org/10.1016/j.ridd.2017.04.006

Viana, C. R., Caldeira, S., Lourenço, M., & Simões Figueiredo, A. (2021). Parenting of Children with Autism Spectrum Disorder: A Grounded Theory Study. Healthcare, 9(7), 872. https://doi.org/10.3390/healthcare9070872

Wang, Z., Xu, X., Han, Q., Chen, Y., Jiang, J., & Ni, G.-X. (2021). Factors associated with public attitudes towards persons with disabilities: A systematic review. BMC Public Health, 21(1), 1058. https://doi.org/10.1186/s12889-021-11139-3

Yaacob, W. N. W., Yaacob, L. H., Muhamad, R., & Zulkifli, M. M. (2021). Behind the Scenes of Parents Nurturing a Child with Autism: A Qualitative Study in Malaysia. International Journal of Environmental Research and Public Health, 18(16), 8532. https://doi.org/10.3390/ijerph18168532

Yıldız, E., & Uzundağ, B. A. (2024). The role of perceived social support in mitigating the impact of parenting stress on children’s effortful control. International Journal of Behavioral Development, 01650254241239975. https://doi.org/10.1177/01650254241239975

Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., Bryson, S., Fombonne, E., Volden, J., Waddell, C., Zwaigenbaum, L., Georgiades, S., Bennett, T., Elsabaggh, M., & Thompson, A. (2017). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism, 21(2), 155–166. https://doi.org/10.1177/1362361316633033

Zhang, X., Middlemiss, W., Zhang, T., & Kelly, L. (2023). Mothers’ parenting stress in Chinese immigrant families: The role of fathers’ involvement and social support. Journal of Family Studies, 29(2), 683–701. https://doi.org/10.1080/13229400.2021.1976250

Zheng, L., Grove, R., & Eapen, V. (2019). Predictors of maternal stress in pre-school and school-aged children with autism. Journal of Intellectual & Developmental Disability, 44(2), 202–211. https://doi.org/10.3109/13668250.2017.1374931

Zovko, M., Šimleša, S., & Olujić Tomazin, M. (2024). Parenting stress, coping strategies and social support for mothers of preschool children with autism spectrum disorder in the Republic of Croatia. Clinical Child Psychology and Psychiatry, 29(2), 674–686. https://doi.org/10.1177/13591045231191802

Downloads

Published

2024-05-25

How to Cite

Musayaroh, S., Abadi, R. F., Maslahah, S. ., & Karina, R. F. R. (2024). Exploring the Relationship between Social Support and Parental Stress in Mothers of Children with Autism. Proceeding of International Conference on Special Education in South East Asia Region, 3(1), 135–142. https://doi.org/10.57142/picsar.v3i1.565